It has been a week since we got home from hospital with George and things are going pretty smoothly. Ellen had her last dose of Retinoic Acid on Sunday night which means that for the first time in months she has not had any medication for three whole days! Ellen continues to have an over night feed through her NG tube but we hope that if her appetite continues to improve this may be stopped in the next few weeks/months. Every day Ellen is getting stronger and she is really starting to enjoy life again. She does still tire pretty easily but this is improving each day. So, at the moment we are taking small steps forward and enjoying every moment!
No comments:
Post a Comment