Saturday 3 April 2010

Brave girl


We are home! This week has been quite tough as Ellen did not respond well to her last two days of anti-GD2. She became quite unwell with a very high pulse rate and low oxygen saturations. We are not too sure why this happened, but are very relieved that it was her last dose. We now have no more planned hospital stays, just two more weeks of retinoic acid at home. Although we are really pleased that we have made it to the end of the treatment protocol we are all feeling a great mixture of emotions. It is very daunting thinking of what Ellen's future holds and we can only hope beyond hope that she gets the chance at life that she so deserves. She has been such a brave, brave girl over the past fourteen months and we are so very proud of her.

1 comment:

  1. Well Done Ellen we are so pleased you are coming to the end of the dreadful treatment you have taken so well you are the Bravest Little Girl in the world we are so happy for you now
    We can understand why your mummy and daddy are so proud of you they are very brave just like you
    Sue and I now have three new grandchildren Violet 8mths Ella Rose 4mths and Elliott 9 weeks I have told them all about the brave little girl we know and how she has beaten the nasty illness every body is now so happy for you they all send you their love and kisses
    We hope to see you soon when you come to Suffolk
    God Bless You
    John & Sue

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