Ellen has had a bit of a 'bumpy summer'. Since April she has had to have blood taken every week to reduce the iron levels in her body caused by all the blood transfusions over the past few years. This has been a bit of a hassle but Ellen has otherwise been really well.
In August, however, whilst at her school holiday club, Ellen vomited a large amount of blood. She was 'blue lighted' to Addenbrookes Hospital and, after a few blood transfusions, on to Kings College Hospital in London. She had an endoscopy which showed an ulcer in her small bowel and veins on her oesophagus. This is because of the damage done to her liver during her previous treatment. This all settled relatively quickly but Ellen has had to have two further endocopies/operations since then to try and remove these veins. The last endoscopy was two weeks ago. This procedure went well but yesterday morning, whilst preparing for the school run, Ellen again vomited a huge amount of blood. She was (again!) 'blue lighted' to Addenbrookes A&E where she was very poorly due to the amount of blood she had lost. Thankfully she is now much better and we are waiting for a bed to become available at Kings so she can have another endoscopy.
Because of all this we have decided to start blogging again so everyone can keep updated with Ellen's progress. Ellen too is keen to keep in touch with her friends so will be intermittently writing letters to you all .........she would love to hear back from you!!
