Wednesday, 31 March 2010

On the home stretch

Ellens final anti GD2 infusion started on Monday. She is coping very well. We are on the paediatric ITU again and hope to be home by the weekend.

Monday, 22 March 2010

The final push

Ellen is doing fine. She has certainly been enjoying the warmer weather with a visit to the farm and many hours spent at the swings and slides this weekend. We now only have four weeks of treatment left. She starts her daily IL-2 injections this afternoon for five days followed by a week on PICU for the immunotherapy and then two weeks of oral chemotherapy at home. Heres hoping the next few weeks go without complication......

Friday, 19 March 2010

Flying high

Today, Ellen's friend Holly died. She was only 12 years old. She too was diagnosed with a Neuroblastoma in February 2009. She was the very brave daughter of a wonderful woman, both of whom we will hold close to our hearts forever. Fly high Holly.

Sunday, 7 March 2010

Home again

Ellen has coped amazingly well with round four of the immunotherapy. We made it home yesterday and, as Ellen was feeling OK, we have managed to escape to the Suffolk coast for a few days rest and recuperation. She starts her penultimate course of retinoic acid tomorrow.

Friday, 5 March 2010

End of round four

Ellen's fourth round of immunotherapy has nearly finished. The week has passed uneventfully. She is still on a morphine pump and is being monitored carefully on Paediatric ITU. She has been more feisty this round (every Doctor has been told to 'go away, leave me alone') and she has managed to spend more time playing and reading books. We hope to be going home tomorrow.