Ellen's nose tube is now OUT! It has been in continuously since Ellen was first admitted to hospital some fifteen months ago. It has been used to give Ellen's medicines and for over night feeds. Since it came out (only six days ago) Ellen's quality of life has improved no end. She seems to have grown in confidence and as the above photo shows she is now eating a bit more and has put on half a kilo in weight over the past month. For me, it is such a relief as it means that when we are out people no longer stare at us and for once I can have a normal conversation with other parents and do not have to explain that Ellen has had cancer etc. etc. etc.
We have also granted Ellen her long standing wish of a cat. As if life was not hectic enough!