Day +50 and Ellen is home!

Ellen has continued to improve since being back in Cambridge. A combination of factors including her being well, us living so close to Addenbrooke's hospital and a not insignificant amount of parental pressure has meant that she has been allowed to sleep at home and is now being treated as an outpatient. A massive step forward but we are all too aware that things can change quickly and she remains vulnerable to infection or post-transplant complications. She isn't yet eating or drinking sufficient quantities so we need to feed her through her nose tube overnight and throughout the day, as well as administer a cocktail of about a dozen different drugs. We are all, however, enjoying the time at home and sleeping in our own beds!

During our time in Bristol we were very fortunate to be given a room at Sam's House, a charity house run by CLIC Sargent for families whose children are having bone marrow transplants. CLIC Sargent are an amazing charity and made our stay in Bristol a much easier experience. One of our good friends, Rowley Aird, has kindly offered to raise money to support CLIC Sargent by running the Ultra-Trail du Mont Blanc, a 167 km trail run that climbs over 9700 metres (equivalent to running from sea level to Everest and then down again!). Whilst Rowley is mad enough to do this sort of thing for fun, we are very honoured that he has chosen to do so in Ellen's name and we would be extremely grateful to anyone who can help him raise some money for such a great cause. Please see following link: www.justgiving.com/utmb4ellen