Just waiting..

Ellen has recovered well from the radiotherapy. She has been a bit tired and had some rather impressive tantrums but is eating well and continuing to put weight on. We are now just waiting to find out when her retinoic acid will start. We have been given a few weeks off so we are making the most of it. We went away for the weekend with a group of friends and are off to Dorset for a mini holiday tonight. Unfortunately Ellen managed to pull her Hickman line out this weekend. This was a bit of a shock and resulted in a rather rapid drive to the hospital but thankfully no harm was done. However, Ellen now has to have another one put in; yet another general anaesthetic!