Day + 77

Ellen is doing well. We are still going to hospital three days a week for IV medicines and a check up. Ellen is still having a mass of medicines and being fed through her NG tube. We are counting down the days to day +100 from transplant (Sep 18th) when the risk of significant post-transplant complications reduce and things should hopefully get easier.

Good Luck Rowley!

Just a quick blog to say good luck to Rowley in the Ultra-Trail du Mont-Blanc which starts next week. See our post of 30 July; he is raising money for CLIC Sargent in Ellen's name, a charity very close to our hearts. Many thanks to all who have sponsored (and apologies if we haven't managed to thank you in person) and its not too late for anyone else who wants to donate. Click on the following link for Rowley's fundraising page. CLICK HERE

Steady as she goes......

Ellen has had an uneventful few days. She is getting stronger and enjoying her limited freedom. We still have to be in hospital at least three days a week but thankfully this is currently on an outpatient basis. In between hospital visits we spend most of our time trying to keep Ellen and George entertained whilst having to avoid any crowds as Ellen's immune system will be compromised for some time; this is not an easy task during the summer holidays! We hope that Ellen continues to remain free of infections and transplant complications over the coming months.

Please watch this...

Ellen continues to do well and there are no significant updates since the last blog. The following link is from a survivor of neuroblastoma. It is incredibly difficult for us to explain what it is like to be Ellen's parents trying to support her through this but even harder to try and understand what it must be like for her. The following link provides an articulate insight into what Ellen and many others have had to endure, and continue to do so. CLICK HERE