Good times

We had a fantastic holiday in Dorset. Ellen has been in the paddling pool, almost swimming in the sea and visited lots of fun places. It is truly wonderful to see her enjoying life so much. We are hoping that her Hickman line can come out soon as it is quite challenging preventing such an active little girl from either pulling it out or covering it in mud/dirty water as she chases the cat around or plays with other children. We see the Consultant on Tuesday so we await the result of the discussion....

London Marathon Video

Below is a link to the Sparks London Marathon video. We are featured from 7 ish minutes on...

http://www.youtube.com/watch?v=iRPYfKRYMhY&feature=youtu.be&a

Life on the outside

We are slowly starting to adapt to life in the 'outside world'. Ellen is doing well. She is eating like we have never seen before and has put on over half a kilo in weight. With more time away from hospital Ellen is gaining confidence and has been enjoying playing with other children; something that she has been denied due to her immune status. This is all helped by the fact that her energy levels are noticeably better. We had hoped that Ellen's Hickman line would be removed last week but as a few of her blood results are yet to return to normal from all the medicines she has had this wont be possible for a good few weeks. We are off on a well earned two week holiday to Dorset next week and cannot wait!!